NAAF Research and Blood Registry
Part of NAAF’s mission is to encourage research in alopecia areata, striv
ing to find a cure or acceptable treatment. NAAF accomplishes the research mission by funding an acclaimed research grant program, seeking out investigators in the areas of genetics, immunology and clinical research. NAAF’s research program is committed to piecing together the puzzle presented by alopecia areata. For more information on current research, please visit www.naaf.org/research.html.
The NAAF Registry - Please help by signing up today!
The Alopecia Areata Registry is set up for the registration and data collection of all individuals with a confirmed diagnosis of alopecia areata and their family members. All people diagnosed with alopecia areata (AA), alopecia universalis (AU), alopecia totalis (AT), patchy persistent AA (AAP) or transient AA (AAT) may participate in the Registry. Unaffected family members and unrelated controls may also participate. Controls are non blood-related individuals who are unaffected and do not live in the same household with alopecia areata patient.
To gather the large amount of information needed to perform a genetic linkage analysis, M. D. Anderson is leading a study that will create a
national registry of alopecia areata patients and their family members. The registry, sponsored by the National Institute of Arthritis & Musculoskeletal & Skin Diseases (NIAMS), is designed to collect research samples that will help determine the genetic components of alopecia areata.
It is a tremendous opportunity to create a well-organized resource that will help researchers develop new treatments, diagnostic tools and prevention measures. Patients identified through the study will be first in line for clinical trials of any new therapies.
M. D. Anderson is one of five U.S. sites registering alopecia areata patients. Principal investigator for the study is Madeleine Duvic, M.D., chief of dermatology at M. D. Anderson's Melanoma & Skin Center, and an internationally recognized expert on skin disorders. Our goal is to enroll 3,100 people over the 10-year life of the study. Registration of study participants is already under way. This site has information about alopecia areata, and everything you need to become part of the study.
Please help the foundation with this important research endeavor and REGISTER TODAY.